Wisconsin Volunteer Photographer - Pay it Forward Session • Magdalene Photography
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MAGDALENE PHOTOGRAPHY | GREEN BAY AND DOOR COUNTY PREMIER WEDDING PHOTOGRAPHY

Arthrogryposis- babies

Wisconsin Volunteer Photographer – Pay it Forward Session

Sonny Seymour & Family

It brings me so much joy to capture the special moments with families who have not been given the best of circumstances. After hearing the Seymour’s story from my sister in law I was so overwhelmed with the thought of wanting to help them in any way possible. Being a mom myself I can’t even begin to imagine the strength needed to be in their shoes. I was fortunate to hold a weekend of mini sessions and raise $600 for their family. It is pennies when you think about the weekly trips to Milwaukee Children’s Hospital and the many other expenses. You can help the Sonny Seymour family with expenses traveling to Children’s Hospital and Medical costs HERE.

Although the Seymour family has gone through so many highs and lows they are strong, courageous and so very loving.

Below are a few excerpts from Sonny’s mom Kristi talking about Sonny’s journey here and diagnosis of Arthrogryposis. As you scroll through the images you can read her full story at the end of the post.

“We went in for our first ultrasound when the doctor told me something is wrong with the baby, his arms and legs are not moving. My heart sank, my eyes filled with tears”

“I remember laying their on operating table praying to hear a cry and he sure did, tears were rolling as much as I was so scared.”

“The special kids are the ones that amaze us and have a special place in our hearts, god gave you this child not to punish but because he knew you were strong enough to handle, and the perfect person to care for them.”

To nominate someone you love for a PAY IT FORWARD session follow this link.

You can help the Sonny Seymour family with expenses traveling to Children’s Hospital and Medical costs HERE. Thank You! It means so very much to this family.

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You never think it’s going to happen to you. I was 5 months pregnant with my second son, and went in for our first ultrasound when the doctor told me something is wrong with the baby, his arms and legs are not moving. My heart sank, my eyes filled with tears. I had so many questions and no answers, we then starting going to children’s hospital in Milwaukee, so many trips and so many tests done, I didn’t know what to expect, was he going to die, how bad is it and what is it. He has what we call Arthrogryposis which is multiple congenital contractors also known as Amc, this is such a rare thing that it happens 1 in every 50,000 and no one knows what cases it. Our life was flipped upside down , all I could think was why me, what did I do??? The rest of my pregnancy was a nightmare not knowing what to expect so we prepared for the worst. We then had c section at 33 weeks along because his heartbeat would drop a lot , never been so scared in my life but at that moment I thought if it would be horrible for my son to live threw this then god will take him. He was born April 26th only 4 pounds and 9 oz. I remember laying their on operating table praying to hear a cry and he sure did, tears were rolling as much as I was so scared. He then had to stay in NICU in Milwaukee for 2 months . I was so happy he was alive but so scared what his future holds. More issues arose while he was their , lots of ups and downs and tears. I just kept telling myself there is a reason I have a child with so many needs, life us still a challenge but threw all this hard time I’ve had so many strangers donate or help me in some way, that’s what amazes me. Is that people do care and that makes a huge difference. Anyone who has to go threw something like this don’t give up and believe everything the doctors say, kids can surprise you. We just can’t take life for granted kids are the future. The special kids are the ones that amaze us and have a special place in our hearts, god gave you this child not to punish but because he knew you were strong enough to handle, and the perfect person to care for them. We gave our son life even though it’s not the best one he is alive and growing. I’m so thankful for that. I take one look at him and it’s all worth it.

For other mothers faced with the diagnosis of Arthrogryposis here is a great link about information and support.

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